The new Neuroblastoma Handbook is now officially available online. Check it out and spread the word so we can get this to families, hospitals and support groups.
Our mission is to provide information, awareness and support for children and adolescents with neuroblastoma and their families, to advocate for their needs, and to support research so every child has a chance to survive and lead a long and healthy life.
The L.O.V.E. Club was started in 2005 in honor of each of our four daughters who were diagnosed with neuroblastoma only weeks apart. Lauren Jones, Olivia Grass, Victoriana Soritau, and Elesha Debenport along with many other little heroes continue to be our inspiration in the fight against this dreadful disease. Once a month we meet at a local restaurant for a L.O.V.E. Club lunch to be an encouragement and support to each other (kids are welcome to accompany parents). At these lunches we discuss treatment options, family issues, fundraising ideas, and future endeavors that we are going to be involved in to raise awareness and funds for research. Besides these monthly lunches we band together to educate, support, and uplift other families who are in the middle of their own battle with neuroblastoma. Our group has grown from four families to over fifteen families represented.
1 comment:
Thank you. My daughter has Neurblastoma and now thanks you to I have the handbook! :)
Post a Comment