Tuesday, December 2, 2008

L.O.V.E. Club Christmas Party & Concert

Saturday, December 20th Ridglea Roundup will be hosting a benefit concert sponsored by 95.9 The Ranch country radio station. Doors open at 4 p.m. and tickets are $10 at the door. Ridglea Roundup is located in Ft. Worth off of Camp Bowie just past Bryant Irving Road. You can get more information at the following website.

http://web.me.com/bets3298/theridglearoundup.com/Home.html

Please come and join us and bring a posse of friends and family with you!!!! Hope to see you there!

Wednesday, October 1, 2008

October LOVE Lunch

Our next LOVE club meeting will be on Monday, October 6 at 1pm at Fudruckers on the south side of I20 and to the west of Bryant Irvin Rd. Last time we met there, we sat out on the patio and were able to have a lot our own space. Please let Karen know if your planning to attend.

Monday, September 8, 2008

September Meeting Notes

*LOVE Club MeetingSeptember 6, 2008Mimi’s CafĂ©**

*Hello everyone,

We had a good, well-attended meeting. Here are notes from the items we discussed.Cathy Mancuso’s surgery went well. She will be at Baylor for several weeks trying to rehabilitate her knees. Raelene is sending some flowers for her from the LOVE Club. We took up a collection for that today.

*Cookbook:*Please try to send in another 5 recipes per person for the cookbook. We must send them in to the printers by 9/20/08. There will be a “Continuing to inspire” section with information on the deceased children and all that we have done in their honor. Karen will contact the Saxons regarding a family update and photo.We will also try to add a celebrity cooks section, so if anyone knows of any professional chefs, please get them involved.It would be great if we could each contact schools in our areas about their yearly book fairs. This would be good opportunity to sell the Cookbooks to a wider audience.

*Ajla will likely be going through MIBG. We may need to help raise money for them as her dad will be out of work for a good month in order to travel with her and Sadie. They may be able to have treatment in Houston, but will know more on Monday.

*Calendar:*We need to find a sponsor or sponsors for each month. Raelene is going to try to work up the cost so that we will know how much it will cost to sponsor 1 month of the year.If you have not sent photos to Shannon, please do so soon. She’s 3 children short of having a feature child for each month.

*A New Year of Hope*This is the name of the foundation that Heather has started. Part of their mission is to help families who are battling NB. This foundation is a great fit for the LOVE club and they are willing to help us fulfill that aspect of our mission. So, here are some fund raising ideas so that we could begin to raise money to start our birthday club and help families who may need to travel for treatment.Applebees Pancake Breakfast: This is a fundraiser in which you and you friends/school/church sell tickets for a pancake breakfast. Applebees makes the pancakes, does the preparation, provides coffee, sodas, OJ, and a one-time serving of sausage. You can serve breakfast from 8-10:30am. They ask for $2 for each ticket and we set the price. So, a $7 ticket would yield $5 per ticket. One suggestion was to have a birthday breakfast for your child. The restaurant’s rules vary from place to place, but check at your local Applebees.A New Year of Hope will also have a golf tournament and walk event in November.Sadie’s husband’s company is having a company picnic on 9/21. She would like for us to use that as a fund raising opportunity. If anyone has ideas or wants to help, please contact Karen for more information.

*Stand up for Life*At the Improv in Addison on September 24 there will be a CNCF fund raiser. Please see www.nbhope.org <http://www.nbhope.org/> or www.improv.com <http://www.improv.com/> for more information.

*Cure Search*Do a virtual walk. Brandi will e-mail us more information.

*Birthday Club*We would like to get it going, but need to get some money in our account at the NYofHope foundation. Raelene has a number of the posters that Brandi used for Caleb’s rodeo. Please let us know if it’s OK to use it for A New Year of Hope events.

*Our next LOVE club meeting will be on Monday, October 6 at 11am at Fudruckers on the south side of I20 and to the west of Bryant Irvin Rd. Last time we met there, we sat out on the patio and were able to have a lot our own space. Please let me know if your planning to attend.

Thank you all!
Karen

Sunday, August 31, 2008

"Life Through the Eyes of A Child Living with Neuroblastoma"


Friday, September 5, 2008 from 6 p.m.-8:30 p.m.

Ft. Worth Community Arts Center

1300 Gendy Street, Ft. Worth



This portrait series by photographer Geno Loro Jr. juxtaposes the bitter truth and beautiful frailty of lives touched by this little-known, little-understood form of childhood cancer. At first glance, the children portrayed are deceptively ordinary – they play dress-up, they laugh, and some gaze curiously into the camera.
But a closer look reveals an unexpected wisdom in the eyes of each – a wisdom that comes from seeing much, suffering much, during a life that’s barely started. A wisdom that is, at times, laced with sorrow, and at others, with hope. A wisdom that will leave you with no doubt that these children are unlike any you have seen before – yet so much like any child you’ve ever known.“Life – Through the Eyes of a Child Living With Neuroblastoma” is part of an effort by the Children’s Neuroblastoma Cancer Foundation (CNCF), along with Cook Children’s Medical Center and the University of North Texas Health Science Center (UNTHSC), to raise public awareness of this dramatically overlooked disease. Throughout the years Cook Children’s has been the first choice for treatment of children with neuroblastoma in North Texas. With a highly specialized focus on this cancer, the neuroblastoma program at the Hematology and Oncology Clinic of Cook Children’s offers even more hope to children touched by this deadly disease, both in Fort Worth and around the globe.
Recently, with the appointment of W. Paul Bowman, M.D. as the department chair of pediatrics for the Texas College of Osteopathic Medicine at the University of North Texas Health Science Center, groundwork has been laid to bring cutting-edge neuroblastoma cancer research to the forefront. A Neuroblastoma Grand Rounds has already been planned and a neuroblastoma symposium is on the horizon. These newly forged relationships complete a trinity of patient support, clinical care, and research – which will only serve to hasten a cure.
We often say that art imitates life. As you will see from these stunning photographs, in this case art inspires life.

Friday, August 15, 2008

September Meeting

Hello All,

We decided to have our September meeting on Saturday, September 6 at 10:30 am at Mimi's Cafe. It is located at
5858 SW LOOP 820 FORT WORTH TX 76132 Phone: (817) 731-9644
Here's a link to a map
Link: <http://maps.google.com/maps?f=q&hl=en&geocode=&q=5858+SW+LOOP+820,+FORT+WORTH+TX+76132&sll=-2.811371,63.984375&sspn=169.844483,360&ie=UTF8&ll=32.687354,-97.42135&spn=0.036697,0.048323&z=14>

I also wanted to remind you of Geno Loro's exhibit which opens on September 5th. If you cannot make it on the 5th, you could take it in on Saturday after the brunch. I would like to challenge each of us to bring 10 people to the exhibit. I mean who wouldn't want to support such a cause and see these beautiful photographs?

If you are planning to attend on the 6th, please respond to this note so that I can make a reservation. I hope to see everyone there!

Karen

Saturday, August 9, 2008

Lunch for Life/L.O.V.E. Club Cookbook, Vol. 2 - set to debut in Sept. 2008

This year we will be compiling another cookbook to raise money for CNCF (Children's Neuroblastoma Cancer Foundation) for much needed research and family support (check out their new handbook for families on nbhope.org). The Lunch for Life Cookbook was a joint effort between The L.O.V.E. Club families and Lunch for Life. That is why we need you to help us make it a great success like last year's cookbook. Almost 3,000 cookbooks were sold at $20 each (for us non-math wizards that is $60,000). This year we will have a recipe form that can be downloaded and filled out for each recipe to make editing and printing that much easier and organized. To access that form please click on the following
link:http://www.nbhope.org/files/folders/lunch_for_life/entry52136.aspx

The sections will remain the same: Appetizers; Salads & Dressings;Soups & Sandwiches; Entrees; Side Dishes; Desserts; Kid-Friendly Foods. I am not sure that we will be able to include Celebrity Recipes unless someone is willing to be the contact person and has these relationships established. It would be nice if we could have maybe a different genre of celebrities or recipes from privately owned restaurants. If anyone has ideas please share them with me.There have been six or seven newly diagnosed children at Cooks since we printed the last cookbook so my idea was to do the story cards on them but then to have a short update on each one of our children with new pictures. For the children who are angels I thought that it would be great to include a page for each of the events that have taken place in their memory this year (ie. Michael Mancuso - 1st Annual Neuroblastoma Walk-A-Thon; Elesha Debenport - Lemonade Stand; Caleb Larson - Rodeo Event at Young Area). This is a wonderful way to show how their legacies live on. Also to include pictures of them on that page and maybe pictures from the events too. We will also include a precious poem that was suggested by Cathy Mancuso to honor the angels. I would like to include an entire information page on neuroblastoma, an information page on CNCF and then important websites for more information on neuroblastoma (the key one being CNCF and Lunch for Life).We will take recipes until August 21, 2008 and then I will need about two weeks to edit before sending them to the printer. This will put the release date sometime in the second or third week of September to honor Children's Cancer Awareness Month. It would be awesome if we had media, media and more media aware of the cookbook. I am even shooting for something to be available at the Geno Loro event so they can pre-order the cookbooks.Please post this on your websites so we can make this another great cookbook, even better than last year's.

Friday, July 25, 2008

Neuroblastoma Handbook

The new Neuroblastoma Handbook is now officially available online. Check it out and spread the word so we can get this to families, hospitals and support groups.

CNCF Handbook for Parents of Children with Neuroblastoma

Tuesday, July 15, 2008

Cowboyin for the Cure

Please click on the picture for a larger view of the flyer. We would love your support at this event!


Monday, July 14, 2008

July Meeting Notes

Hello All,

I have a new computer and lost some of the e-mails I had such as Crys and Missy. If you notice I've missed a name, please let me know so that I can forward it on to everyone who is interested.

Lesley Atkinson and Whitney Langdon were there to report on the progress of the NB program. They both work with the foundation. Whitney helps with 3rd party fund raisers and Lesley works with large corporations. Lesley said that the program will consist of clinical research, a consortium with other institutions that engage in lab research thus Cooks patients to have more treatment options, a parents group and educational support. They expect to have a firm design and timeline in the next 60 to 90 days. They've currently hired 3 research interns and they will be doing 1 study on NB.

The Stucker family (Elizabeth's family) is helping to arrange a wine auction. We will have more info on that later.

The Sankry family would be grateful for the LOVE club to help with the walk they have next year.

This is all Lesley could tell us at present. Hopefully they will be more informed at our next meeting.

Mark said that the CNCF Parent Handbook is now available on line. It is a wealth of information for parents of children with NB. Check it out at http://www.nbhope.org/ look under "Resources".

We talked about moving our meeting times to the evenings so that more people can attend the meetings. I would appreciate your feedback on that question.

Brandi has some posters for the Rodeo. Remember to attend at 10am. If you've sold any raffle tickets, please bring them that day to Brandi so they will be entered in the drawing.

Heather also shared a sheet regarding A New Year of Hope Foundation. They have several committees with openings in the following areas: Events Committee, PR, Fundraising, Volunteer Recruitment

All committees will have one chairperson and will be asked to vilunteer for one-yr. terms. volunteers can stay on any particular committee for more than one term but are only allowed two consecutive hairperson terms every two years. For more information, please e-mail Heather at heather@anewyearofhope.org

Thanks,
Karen

Monday, July 7, 2008

Recipe Form

Please use the following form to submit recipes for Volume II of the Lunch for Life Cookbook. This year our cookbooks will be available in the beginning of September to commemorate the month as National Childhood Cancer Awareness Month. We will be accepting recipes until August 1, 2008. You can copy and paste this form into Microsoft Word and then send it to the email below. Also, please attach a picture of your neuroblastoma warrior to the recipes that you are submitting so we are able to publish it in the cookbook alongside of each recipe.
Blessings,
The L.O.V.E. Club Families
(Please Print)
Today’s Date: 5/12/2008

Recipe INFORMATION
Recipe Submitted by:

In Honor/Memory of:
Age of Child at Diagnosis:
Please choose a category that best describes child’s situation: Angel, In treatment, In Remission, Relapsed
City & State where Child Lives:




Title of Recipe:
Yield of Recipe:
Oven Temperature:





Ingredients of Recipe:







Instructions for Recipe:

















Submittee’s relationship to child:
Self
Parent
Family Member
Friend
Other:


Comments:







Sunday, July 6, 2008

July LOVE Lunch

We will have a LOVE Club lunch on Monday. We will meet at Mimi's Cafe on Bryant Irvin at 1:00. Please let me know if you will be able to join us so that I can have them get a big enough table for us. Whitney Langdon and Leslie Atkinson will join us for the meeting to give us more information about the NB Center at Cook. If you have not sent photos to Shannon Ford yet, please bring a disc with those on it so that we can get the pictures to her.

Thanks,
Karen

Tuesday, June 17, 2008

Root Beer Float and Lemonade Stand Coming Up!!!



Lauren Olivia Victoriana Elesha
2nd Annual LOVE Club Event
June 21, 2008
10am – 2pm
At the Home Depot
9509 White Settlement RdFort Worth, TX 76108
Helping children and their families affected by a childhood cancer called Neuroblastoma
Fun Activities for children Bake Sale
Lemonade Face Painting
Root beer Floats
Cake Walk Handicrafts
Ft. Worth Police Free Kids’ ID Fire Trucks Police Cars

Tuesday, June 10, 2008

June Meeting Notes

Thank you to all who came to the meeting on Monday. For those who are unaware, Monday was "Bubba Day". Now if our city recognizes Bubba Day (My mom heard them mention it on the radio) why shouldn't they concede to having a World NB Day? If you are willing to write to the City Counsel asking them to declare September 27th World Neuroblastoma Day just contact Mark. He is hoping to get 25 cities to agree to it. If you are interested in this endeavor, Mark would be ecstatic!

We talked about different venues for the activities on the 27th. Raelene has looked at Southwestern Seminary and Mark is going to check at TCU. Another idea would be the Lockheed Martin Recreation facility. We would like to make it a bit of a field day/carnival. We would like to have cake walks and other carnival type games. Mark, I have a friend whose brother has a Ferris Wheel. She's going to ask if he would volunteer to use and operate it for the day.

I also wanted to let everyone know that we will have another Rootbeer float, Lemonade stand, and bakesale in Ft. Worth on 6/21 from 10am to 2pm. We need help getting sponsors to provide the lemonade, rootbeer, and baked goods. We will also need help running different stations. Ft. Worth police will be out to ID children. We'll also have a firetruck, ambulance, and maybe even a helicopter for children to tour. We would like to have some face painting, so if you have the skills for that, please let me know. If you have any other ideas, give me a call.

Try to make it to our next meeting as Leslie Atkins will be there to discuss the plans for the NB Research Clinic.

Our next meeting will be July 7 at 1pm at Mimi's Cafe. Please let me know if you're planning on coming.

JR is doing well in transplant. His actual transplant day is Friday, June 6.

Thanks for all you're doing to make a difference in the lives of children and their families.

Friday, May 23, 2008

Our Purple Cow Fundraiser is fast approaching! Remember to come to one of the three Dallas/Ft. Worth area Purple Cows on Tuesday, May 27th from 11 a.m. to 9 p.m. Purple Cow will donate 15% of all their profits that day to CNCF. We will also have T-shirts for sale there for $15. Tell them you are there for Lunch for Life and register to win an I-Pod and other door prizes.

Thursday, May 1, 2008

May LOVE Lunch

We will have our monthly meeting on Monday, May 5 at 1pm at Chicken Ranch in Ft. Worth.

Just cut and paste the following link in your URL.

301 W Exchange AveFort Worth, TX 76106
http://maps.google.com/maps?f=q&hl=en&geocode=&q=301+W.+Exchange,+Ft.+Worth,+TX&sll=37.0625,-95.677068&sspn=42.174768,62.753906&ie=UTF8&z=16&iwloc=addr>

Tuesday, April 29, 2008

Our 1st Annual NB Walk


This was was a HUGE success! There were around 250 people there to support Cooks Neuroblastoma Center. There were 18 NB families and we raised $20,000 after all the money was collected!

Here are some pictures of our fun Saturday morning.

setting up CNCF Billboard
The Soritau Family
Friends walking for Tori
Super Lukas

The MacDonnell's
Just LOOK at this crowd!


Be ready for next year! We plan on raising even more!

Tuesday, April 8, 2008

Ft. Worth Star Telegram Article

Lunch for Life recently made front page news. Here's the link to our article:http://www.star-telegram.com/local/story/553255.html

NB Walk for a Cure


1st Annual Neuroblastoma Walk for a Cure.
In memory of Michael Mancuso and In Honor of Kyla Moore



Please join us for the 1st Annual Neuroblastoma Walk for a Cure!

Entry Form

Date: Saturday, April 19, 2008

Time: 9:00am - 11:00am


Location: Acme Brick Headquarters
Street: 3101 Bryant Irvin Road South
City/Town: Fort Worth, TX
Contact InfoPhone: (817)347-7038


Description: 3 mile walk to raise awareness and funds for the new Neuroblastoma Program at Cook Children's Medical Center.