Sunday, August 31, 2008

"Life Through the Eyes of A Child Living with Neuroblastoma"


Friday, September 5, 2008 from 6 p.m.-8:30 p.m.

Ft. Worth Community Arts Center

1300 Gendy Street, Ft. Worth



This portrait series by photographer Geno Loro Jr. juxtaposes the bitter truth and beautiful frailty of lives touched by this little-known, little-understood form of childhood cancer. At first glance, the children portrayed are deceptively ordinary – they play dress-up, they laugh, and some gaze curiously into the camera.
But a closer look reveals an unexpected wisdom in the eyes of each – a wisdom that comes from seeing much, suffering much, during a life that’s barely started. A wisdom that is, at times, laced with sorrow, and at others, with hope. A wisdom that will leave you with no doubt that these children are unlike any you have seen before – yet so much like any child you’ve ever known.“Life – Through the Eyes of a Child Living With Neuroblastoma” is part of an effort by the Children’s Neuroblastoma Cancer Foundation (CNCF), along with Cook Children’s Medical Center and the University of North Texas Health Science Center (UNTHSC), to raise public awareness of this dramatically overlooked disease. Throughout the years Cook Children’s has been the first choice for treatment of children with neuroblastoma in North Texas. With a highly specialized focus on this cancer, the neuroblastoma program at the Hematology and Oncology Clinic of Cook Children’s offers even more hope to children touched by this deadly disease, both in Fort Worth and around the globe.
Recently, with the appointment of W. Paul Bowman, M.D. as the department chair of pediatrics for the Texas College of Osteopathic Medicine at the University of North Texas Health Science Center, groundwork has been laid to bring cutting-edge neuroblastoma cancer research to the forefront. A Neuroblastoma Grand Rounds has already been planned and a neuroblastoma symposium is on the horizon. These newly forged relationships complete a trinity of patient support, clinical care, and research – which will only serve to hasten a cure.
We often say that art imitates life. As you will see from these stunning photographs, in this case art inspires life.

Friday, August 15, 2008

September Meeting

Hello All,

We decided to have our September meeting on Saturday, September 6 at 10:30 am at Mimi's Cafe. It is located at
5858 SW LOOP 820 FORT WORTH TX 76132 Phone: (817) 731-9644
Here's a link to a map
Link: <http://maps.google.com/maps?f=q&hl=en&geocode=&q=5858+SW+LOOP+820,+FORT+WORTH+TX+76132&sll=-2.811371,63.984375&sspn=169.844483,360&ie=UTF8&ll=32.687354,-97.42135&spn=0.036697,0.048323&z=14>

I also wanted to remind you of Geno Loro's exhibit which opens on September 5th. If you cannot make it on the 5th, you could take it in on Saturday after the brunch. I would like to challenge each of us to bring 10 people to the exhibit. I mean who wouldn't want to support such a cause and see these beautiful photographs?

If you are planning to attend on the 6th, please respond to this note so that I can make a reservation. I hope to see everyone there!

Karen

Saturday, August 9, 2008

Lunch for Life/L.O.V.E. Club Cookbook, Vol. 2 - set to debut in Sept. 2008

This year we will be compiling another cookbook to raise money for CNCF (Children's Neuroblastoma Cancer Foundation) for much needed research and family support (check out their new handbook for families on nbhope.org). The Lunch for Life Cookbook was a joint effort between The L.O.V.E. Club families and Lunch for Life. That is why we need you to help us make it a great success like last year's cookbook. Almost 3,000 cookbooks were sold at $20 each (for us non-math wizards that is $60,000). This year we will have a recipe form that can be downloaded and filled out for each recipe to make editing and printing that much easier and organized. To access that form please click on the following
link:http://www.nbhope.org/files/folders/lunch_for_life/entry52136.aspx

The sections will remain the same: Appetizers; Salads & Dressings;Soups & Sandwiches; Entrees; Side Dishes; Desserts; Kid-Friendly Foods. I am not sure that we will be able to include Celebrity Recipes unless someone is willing to be the contact person and has these relationships established. It would be nice if we could have maybe a different genre of celebrities or recipes from privately owned restaurants. If anyone has ideas please share them with me.There have been six or seven newly diagnosed children at Cooks since we printed the last cookbook so my idea was to do the story cards on them but then to have a short update on each one of our children with new pictures. For the children who are angels I thought that it would be great to include a page for each of the events that have taken place in their memory this year (ie. Michael Mancuso - 1st Annual Neuroblastoma Walk-A-Thon; Elesha Debenport - Lemonade Stand; Caleb Larson - Rodeo Event at Young Area). This is a wonderful way to show how their legacies live on. Also to include pictures of them on that page and maybe pictures from the events too. We will also include a precious poem that was suggested by Cathy Mancuso to honor the angels. I would like to include an entire information page on neuroblastoma, an information page on CNCF and then important websites for more information on neuroblastoma (the key one being CNCF and Lunch for Life).We will take recipes until August 21, 2008 and then I will need about two weeks to edit before sending them to the printer. This will put the release date sometime in the second or third week of September to honor Children's Cancer Awareness Month. It would be awesome if we had media, media and more media aware of the cookbook. I am even shooting for something to be available at the Geno Loro event so they can pre-order the cookbooks.Please post this on your websites so we can make this another great cookbook, even better than last year's.