Thank you to all who came to the meeting on Monday. For those who are unaware, Monday was "Bubba Day". Now if our city recognizes Bubba Day (My mom heard them mention it on the radio) why shouldn't they concede to having a World NB Day? If you are willing to write to the City Counsel asking them to declare September 27th World Neuroblastoma Day just contact Mark. He is hoping to get 25 cities to agree to it. If you are interested in this endeavor, Mark would be ecstatic!
We talked about different venues for the activities on the 27th. Raelene has looked at Southwestern Seminary and Mark is going to check at TCU. Another idea would be the Lockheed Martin Recreation facility. We would like to make it a bit of a field day/carnival. We would like to have cake walks and other carnival type games. Mark, I have a friend whose brother has a Ferris Wheel. She's going to ask if he would volunteer to use and operate it for the day.
I also wanted to let everyone know that we will have another
Rootbeer float, Lemonade stand, and bakesale in Ft. Worth on 6/21 from 10am to 2pm. We need help getting sponsors to provide the lemonade, rootbeer, and baked goods. We will also need help running different stations. Ft. Worth police will be out to ID children. We'll also have a firetruck, ambulance, and maybe even a helicopter for children to tour. We would like to have some face painting, so if you have the skills for that, please let me know. If you have any other ideas, give me a call.
Try to make it to our next meeting as Leslie Atkins will be there to discuss the plans for the NB Research Clinic.
Our next meeting will be July 7 at 1pm at Mimi's Cafe. Please let me know if you're planning on coming.
JR is doing well in transplant. His actual transplant day is Friday, June 6.
Thanks for all you're doing to make a difference in the lives of children and their families.
Lauren Olivia Victoriana Elesha
